Lilypie Premature Baby tickers

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Saturday, October 29, 2011

In The Words of Dad - Explosion + Room Full of Babies = Me... Going To Hell

Logan is doing alright. He is back up to 14CCs of a mixture that is 3/4 formula, 1/4 water. He was a little gassy, mainly him getting used to the new mixture and amount. We were chillaxing while we waited for his nurse to finish up with another baby so Logan could weigh in (7 lbs 15.3 oz) when there was a loud pop to my left. Loud. Everyone heard it. People were freaking out at first, then they figured out that it was just a bag of water that feeds into the blender blowing up. I guess that Logan's canula was somehow kinked somewhere (oops). This created back-pressure and eventually a peace shattering explosion.
So how does all this add up to me going to Hell? Well, let's see... first thought through my head: oh God, if that was a gunshot please let them have shot me in the head. Second thought: I'm alive... there's water all over the ground, and... on my arm. Sweet, just how I wanted to spend my Saturday night: wet and lonely (I am sure the perverts out there are having a field day with that statement - Lord knows I am). Then it dawned on me: crying babies and people everywhere freaking out. Hilarious.
Special place in Hell. I'm going there, did you know?

Saturday, October 22, 2011

In The Words of Dad

October 21/22, 2011. They stopped feeding Logan today. They thought they saw a dilated loop. Let me address the track record with such things: Last time someone thought they saw a dilated loop one of the other doctors looked at the same x-ray the other doctor had and said "I don't see it. Not sure what he is talking about."
Logan is cranky - not eating for a day'll do that to a fellow. His one comfort in life right now is his pacifier. If it falls out (which it does for many reasons) he goes ballistic. His swing was enough at first, then the hunger got to the point that it was causing him physical discomfort.
The other things that bothered them this week, and led to this decision include (but are not limited to) an increased amount of output from his "home-made stoma," increase in vomiting, an increased girth. All of which happened after the transition from 14cc/hr to 16cc/hr continuous feeds - which one of the doctors warned us would happen a couple weeks back at the care conference.
Oh dear lord, my son is being cared for by people who don't know how to read each other's notes. God, if you check blogs: get your smiting boots on.

Saturday, October 8, 2011

There and back again

So Logan is having a rough time. We're not sure why but his blood level dropped like a rock and he got real cold. His nurse (his FAVORITE nurse) gave him some blood and cuddles last night and he's doing better. He had to be put on a nasal canula because he was breathing real fast. They think it's either because his tummy is so full of food it's hard to breath or because he is overloaded with fluid (or both). Otherwise he is doing okay.

Wednesday, October 5, 2011

food.....sorta

So little one is going to get some pedialite sometime today. His home made ostomy has slowed down the amount of stool leaking out. The hope is that it's healing itself closed and no surgery is necessary. He's just basically going to get a teaspoon every 3 hours but I wanted to start painfully slow. We'll see what happens.

Saturday, September 24, 2011

Waiting game explained

I complained up a storm (actually I used the "B" word but I'm trying to clean it up a bit) and pushed my weight at as angry mom and they called a teleconference with the surgeon. I explained that he is in extreme pain and cannot sleep and I am tired of the "wait and see" attitude. He finally explained WHY we are waiting and seeing. Apparently he thinks the stool isn't going everywhere in his abdomen but is using the tunnel they created when he had the ostomy. They think that the stool is coming out exactly where they made the ostomy and it is coming out just like it did before. If they are correct they believe that it will heal on its own, but just take a little time. If the stool increases, though, they expect that it is coming out at a different place and it will need to be surgically repaired. They are calling in the wound care team to look at the hole on his skin. The stool is "digesting" his skin and so it's VERY painful. He is still getting versed (a good pain killer) every so often which is keeping him calm. They plan to feed him again sometime today so we'll see what happens.

Meanwhile they did start giving him antibiotics just in case. I INSISTED on this. The e coli thing was the scariest moment in my life and I'll be DAMNED if I see it repeated.

Thursday, September 22, 2011

sprung a leak

So logan's wounds from his surgeries healed over. The dr called Zach at around 9 or 10pm and told him that he had a hole in his stomach that fluid is leaking out of. Basicly the hole where his ostomy used to be broke open and is now leaking what the nurses believe to be stool. We have no clue what this means or what is going to happen. Tomorrow the dr is coming to look at it. I am freaking out and worried. Hopefully the dr sleeps well tonight. He is going to get an earfull when I see him.