Doing Better

Logan is doing a little better. He had 2 brady episodes but he brought himself back up. He had one of his seizure like episodes and they had him hooked up to the EEG so they'll be able to look at it tomorrow when they download the results. His dressings look good and aren't saturating with blood and fluids as fast. They changed some of the packed dressings and day by day they'll pull a little more out and let it heal. They said his stomach is looking better. No temps. They increased his pain meds again and put him back on versed. They don't think the versed and the seizure like things are linked. I guess we'll find out. He is still vented but they didn't have to chase his O2 needs as much. All in all everyone seems satisfied with his recovery. I think that if I color coated the severity he was Red on Sunday. Burnt Orange Monday. Regular Orange today. Hopefully tomorrow I can report a bit of yellow :)

Oh and yes.....I'm a goof ball.

I won't let you.

Logan very nearly died today. He had been having bronchial spasms that closed his airways Saturday night. Every time this happened that had to give him breaths of straight oxygen. At about 8:30 Sunday morning he had a bad episode and his heart stopped. His oxygen went basicly to 0. They coded him and it was that scene from er. Chest compressions. Counting. Breathing. Loved one crying to come back.

It was all too real.

They were able to revive him after 2-3 minutes.

The decision was pretty much made to send him to a children's hospital. They sent him here: http://www.childrenshospitalofil.org/

It is downright the most beautiful hospital I have ever set my eyes on. There are so many places to explore and the detail is amazing. I wish we could have brought him here sooner.

The technology alone is amazing. The staff is so wonderful. I am saddened that he is so far away from me but I know they are taking care of my little wonder.

I love you Logan. Don't stop fighting. You are in a safe place and mommy needs you.

We don't know what is wrong with him. He is very sick. We don't know if he'll make it. Pray for my angel. Pray that if this is his time, to go with love. We all love him so much. My sweet baby boy.

Every tear I shed for you are kisses.

Mommy loves you more than she can express.

Sorry, it's been awhile.

A lot has happened. 12 days ago he was positive for a staph infection in his central line. They gave him antibiotics and it was gone 3 days later. They went ahead and did his surgery. That went well. He is a proud owner of a g tube and an ileostomy (again). He started running a temp shortly after and his recovery has been shaky. They thought it was post op yuck so they gave him some tylonal but ran some blood cultures (the normal 2) and waited it out. One came back negative and the second came back positive.....maybe. The neonatologist told me last night that it wasn't a positive positive, but more of a suspicious positive. So he did some other test and it came back negative. SO I thought he got a false positive. This morning the surgical nurse practitioner calls me and says that he most definitely has staph and they are going to pull his broviac central line and put a new one in at another location at 7:00am Wednesday (tomorrow). I'm like WTF?!?

Clearly communication in the NICU needs some improvement.

So I'm confused, she's confused, Logan is sick, and no one knows what to do about it.

another surgery

Logan will have surgery again this Wednesday. He is getting a g-tube and probably an ileostomy like he had before. We don't know what time he'll go into surgery yet. I'll post when I know.

webcam baby

So since Logan won't be home for a long time I'm considering downloading an instant messenger with webcam capabilities. We can take our laptop in there so we can video chat with family who can't go in (anyone under 18 or people out of state). What we need to know is what messenger company to go with so we don't have to download more than one.

Yahoo instant messenger and skype are examples of what we can you. We lean toward YIM because it's easy but if it means we can chat with more family we will consider others.

Let me know what you think.

Zach

Short Update

So Logan has ANOTHER stricture in his intestine. It doesn't completely close up his intestine but it's the main reason why he has the fistula. They are planning to do surgery sometime. They were going to do it this week but the surgeon on staff is one that has never seen Logan before. We thought it smarter to wait til a surgeon who's familiar with him to do his surgery. Also they are planning on putting in a G tube which is basically a catheter that feeds him directly into his stomach. This will enable the nose tube he's currently using to come out. It doesn't feel good to constantly have something down your nose and down your throat. It might be why he can't swallow anything.

Anywho that's about all for today.

Logan's 1st Halloween

"WALK THE PLANK"