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Thursday, January 5, 2012

Thinking and thinking

So I had a care conference with the Surgeon, the dietitian, and the Neonatologist. We pretty much talked about Logan head to toe.

  • Logan had another EEG done to see if he is having any neurological issues. There weren't any results back just yet so I'll update when I hear from them.
  • They are doing genetic testing to check for osteo imperfecta (a bone disorder) and another skin test to check for some genetic liver disease. His bones are looking good. There are no new fractures and the ones he had are healing.
  • His oxygen is still on 1/8 of a liter and I take him completely off oxygen when he is awake. I had him off for 2 hours while awake, at 1/16 for 30 minutes after he fell asleep, and when he hit deep sleep I had to put him back on 1/8.
  • His heart rate is doing nice. When calm and awake he is in the 120s with a slightly irregular sinus rhythm.
  • His bowels are doing well. His feeds are up to 20 mL an hour and re-feeds are doing well. He's pooping once or twice a shift rectally. Usually a soft formed poopish poop and in a large amount. His stomach wound is doing well and is now left to open air. It looks kinda gnarly but isn't gooey at all. Just look like a shark took a bite out and it's scabbed over.
  • Therapy is going well. He is turning his head to the left more often. He still doesn't want to reach and grab but he's getting there. He is kicking his legs more. We're working on getting his legs in a neutral position. He doesn't like putting his right leg in so we're working on that.
As far as future surgeries go I have some thinking and deciding to do. One of two things can happen:
  1. In 6-8 weeks the Omegaven will have had time to heal his liver to be able to do surgery. We can do surgery while he's still in the NICU and have his recovery and go home about a week afterwards (depending on how well the surgery goes). The surgeon feels confident that this surgery will go better in the past because of the Omegaven improving his liver function and more importantly both sides of the bowel are happy functioning bowels. Before it was a somewhat happy healthy bowel connecting to a sad, lazy bowel.
  2. Or we can take him home for awhile (after 6-8 weeks of letting the Omegaven kick in). Let him get bigger and healthier and then take him back to do surgery. Before this can happen I have to live in the NICU for 2-3 days and do ALL of Logan's care and prove to them that I am comfortable with this. The negatives is when he does have surgery he will recover in Peds. instead of the NICU.
Lots and lots of thinking....

On a less serious note, we were watching Logan sleep. His eyes kept fluttering and he was smiling and then the most wonderful thing happened. HE GIGGLED!!!

Most beautiful noise I've heard in my life. I love my lil one so much... I nearly cried from just a little squeak of a giggle...

2 comments:

  1. I wish I could of heard it!! I'm glad you guys did though. Hugs!!

    ReplyDelete
  2. LOVE and thinking of you guys..Uncle Bill

    ReplyDelete

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